Useful Links, Past Presentations, and Archived Newsletters
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Links to Helpful Resources:
Note that all organizations below offer information and services free of charge.
Myeloma Canada
The only Canadian national organization dedicated specifically to myeloma. www.myeloma.ca
Myeloma Canada Facebook Page
Provides up-to-date Canadian myeloma related news and information. www.facebook.com/multiple.myeloma.canada
Canadian Myeloma Research Group - CMRG - cmrg.ca
As myeloma patients, we rely heavily on clinical trials and new research. Much of this activity originates with pharmaceutical companies based outside Canada, and it is in our interest as patients to help the CMRG show there is interest in these trials in Canada to help them attract more trials not only at PMCC, but at cancer centres across Canada. We know there is strong demand for trials, but we also know that there isn’t enough awareness of the existence of trials for myeloma patients in Canada. If you agree, you can follow the CMRG on Facebook, on x, and can subscribe to their on their youtube page to help support this initiative. You will also be able to access very interesting videos on new and developing myeloma treatments from a Canadian perspective.
Schedule of Upcoming CMRG Patient and Caregiver Webinars: cmrg.ca/news-and-events/patient-webinars/
Link to the CMRG Facebook page: https://www.facebook.com/CanadianMyelomaResearchGroup
Link to CMRG youtube channel: https://bit.ly/3m7aJd5
International Myeloma Foundation
An international organization based in the US specifically for myeloma. www.myeloma.org
Leukemia and Lymphoma Society of Canada
Provides information and patient resources on blood cancers, including multiple myeloma: www.bloodcancers.ca/
Princess Margaret Cancer Centre (PMCC)
Has a wealth of online information on a wide variety of topics for cancer patients and families. www.theprincessmargaret.ca
Princess Margaret Cancer Centre Myeloma Clinic
Describes the Myeloma Clinic at PMCC, with links to informative resources about myeloma and cancer in general.
www.uhn.ca/PrincessMargaret/Clinics/Myeloma
Canadian Cancer Trials
Search for myeloma clinical trials in Canada and sign-up for alerts when trials are announced.
www.canadiancancertrials.ca
Wellspring
Four centres in the GTA, offering programs and services that meet emotional, social, practical, and restorative needs of cancer patients and caregivers. www.wellspring.ca
Gilda's Club of Greater Toronto
Offers emotional, social, and practical support for cancer patients, families, and friends.
www.gildasclubtoronto.org
ELLICSR
A health, wellness, and cancer survivorship centre, associated with Princess Margaret Cancer Centre. www.ellicsr.ca
Canadian Cancer Society
A national, community based organization whose mission is eradication of cancer and enhancement of the quality of life of people living with cancer. www.cancer.ca
Prescription Drug Coverage in Canada
A guide to reimbursement for prescription medications in Canada:
https://www.canada.ca/en/health-canada/services/health-care-system/pharmaceuticals/access-insurance-coverage-prescription-medicines.html
Cell Therapy and Transplant Canada
Cell Therapy and Transplant Canada (CTTC), formerly the Canadian Bone Marrow Transplant Group (CBMTG). Membership consists of all of the cancer centres in Canada which conduct stem cell or bone marrow transplants, with membership recently opened to patients and caregivers. Every year, the CTTC has a large three-day Annual Conference. In recent years they also hosted a one-day Patient and Caregiver Symposium, for transplant patients and caregivers. Patients and caregivers may attend the Symposium for free, and also attend the Conference for a nominal fee. More information about the CTTC and the Annual Conference and Symposium can be found here: https://www.cttcanada.org/
Other Myeloma Support Groups in the Toronto Area
Halton-Peel Myeloma Support Group
www.myelomahaltonpeel.org
London and District Myeloma Support Group
myelomalondon.ca
Northumberland Support Group - Cobourg
Robert Hawkins or Lynda Aiken by email at northumberlandsupport@myeloma.ca or by phone (289) 312-1473
The Picton Myeloma Support Group
Iris Phillips, 613 476‑0027, email: wigphill@gmail.com
The Waterloo Region Myeloma Support Group
Susan McDowell, e-mail: susan-mcdowell@rogers.com
Hamilton and District Multiple Myeloma Network
hamiltonnetwork@myeloma.ca
York Region and Area Myeloma Support Group
yorkregionsupport@myeloma.ca
Past Presentations/ Archived Newsletters
Videos of many of our meetings that had a speaker can be found on the Myeloma Canada youtube channel at: https://www.youtube.com/user/myelomacanada
Some pdf's of speakers slides are available here:
December 5 2020 SPEAKER: Eric Georgieff, Pharmacist
TOPIC: Drugs commonly used for myeloma patients, and their side effects
Links to Helpful Resources:
Note that all organizations below offer information and services free of charge.
Myeloma Canada
The only Canadian national organization dedicated specifically to myeloma. www.myeloma.ca
Myeloma Canada Facebook Page
Provides up-to-date Canadian myeloma related news and information. www.facebook.com/multiple.myeloma.canada
Canadian Myeloma Research Group - CMRG - cmrg.ca
As myeloma patients, we rely heavily on clinical trials and new research. Much of this activity originates with pharmaceutical companies based outside Canada, and it is in our interest as patients to help the CMRG show there is interest in these trials in Canada to help them attract more trials not only at PMCC, but at cancer centres across Canada. We know there is strong demand for trials, but we also know that there isn’t enough awareness of the existence of trials for myeloma patients in Canada. If you agree, you can follow the CMRG on Facebook, on x, and can subscribe to their on their youtube page to help support this initiative. You will also be able to access very interesting videos on new and developing myeloma treatments from a Canadian perspective.
Schedule of Upcoming CMRG Patient and Caregiver Webinars: cmrg.ca/news-and-events/patient-webinars/
Link to the CMRG Facebook page: https://www.facebook.com/CanadianMyelomaResearchGroup
Link to CMRG youtube channel: https://bit.ly/3m7aJd5
International Myeloma Foundation
An international organization based in the US specifically for myeloma. www.myeloma.org
Leukemia and Lymphoma Society of Canada
Provides information and patient resources on blood cancers, including multiple myeloma: www.bloodcancers.ca/
Princess Margaret Cancer Centre (PMCC)
Has a wealth of online information on a wide variety of topics for cancer patients and families. www.theprincessmargaret.ca
Princess Margaret Cancer Centre Myeloma Clinic
Describes the Myeloma Clinic at PMCC, with links to informative resources about myeloma and cancer in general.
www.uhn.ca/PrincessMargaret/Clinics/Myeloma
Canadian Cancer Trials
Search for myeloma clinical trials in Canada and sign-up for alerts when trials are announced.
www.canadiancancertrials.ca
Wellspring
Four centres in the GTA, offering programs and services that meet emotional, social, practical, and restorative needs of cancer patients and caregivers. www.wellspring.ca
Gilda's Club of Greater Toronto
Offers emotional, social, and practical support for cancer patients, families, and friends.
www.gildasclubtoronto.org
ELLICSR
A health, wellness, and cancer survivorship centre, associated with Princess Margaret Cancer Centre. www.ellicsr.ca
Canadian Cancer Society
A national, community based organization whose mission is eradication of cancer and enhancement of the quality of life of people living with cancer. www.cancer.ca
Prescription Drug Coverage in Canada
A guide to reimbursement for prescription medications in Canada:
https://www.canada.ca/en/health-canada/services/health-care-system/pharmaceuticals/access-insurance-coverage-prescription-medicines.html
Cell Therapy and Transplant Canada
Cell Therapy and Transplant Canada (CTTC), formerly the Canadian Bone Marrow Transplant Group (CBMTG). Membership consists of all of the cancer centres in Canada which conduct stem cell or bone marrow transplants, with membership recently opened to patients and caregivers. Every year, the CTTC has a large three-day Annual Conference. In recent years they also hosted a one-day Patient and Caregiver Symposium, for transplant patients and caregivers. Patients and caregivers may attend the Symposium for free, and also attend the Conference for a nominal fee. More information about the CTTC and the Annual Conference and Symposium can be found here: https://www.cttcanada.org/
Other Myeloma Support Groups in the Toronto Area
Halton-Peel Myeloma Support Group
www.myelomahaltonpeel.org
London and District Myeloma Support Group
myelomalondon.ca
Northumberland Support Group - Cobourg
Robert Hawkins or Lynda Aiken by email at northumberlandsupport@myeloma.ca or by phone (289) 312-1473
The Picton Myeloma Support Group
Iris Phillips, 613 476‑0027, email: wigphill@gmail.com
The Waterloo Region Myeloma Support Group
Susan McDowell, e-mail: susan-mcdowell@rogers.com
Hamilton and District Multiple Myeloma Network
hamiltonnetwork@myeloma.ca
York Region and Area Myeloma Support Group
yorkregionsupport@myeloma.ca
Past Presentations/ Archived Newsletters
Videos of many of our meetings that had a speaker can be found on the Myeloma Canada youtube channel at: https://www.youtube.com/user/myelomacanada
Some pdf's of speakers slides are available here:
December 5 2020 SPEAKER: Eric Georgieff, Pharmacist
TOPIC: Drugs commonly used for myeloma patients, and their side effects
| Slides from Eric Georgieff's presentation - Drug Therapy in Multiple Myeloma |
| November 2023 Newsletter |
| March 2024 Newsletter |
| January 2024 Newsletter |